I have had this draft post saved since summer 2015. As we finally approach our FET, I figure its time to publish it.
I would LOVE the advice of anyone who has been on the blood thinner Lovenox in a similar situation to mine.
Let me preface this by saying that the *only* blood clotting disorder I have is Prothrombin Thrombophilia (Hetero, or just 1 copy). I have had several RPL panels, genetic tests, etc. to confirm this.
Here is the Lovenox history-
Pregnancy 1-miscarriage. No lovenox treatment during this pregnancy. D & C comes back “inconclusive” as to genetic anomalies in baby.
Pregnancy 2-natural miscarriage, genetic make-ups of babies not known. No lovenox treatment during this pregnancy.
Pregnancy 3-missed miscarriage. Treated with Lovenox from before the transfer, and through pregnancy until days before the D & C. D & C proves baby is genetically normal.
So, as you can see, I have miscarried both on Lovenox & not on Lovenox.
I have now talked to my OB, 2 RE’s, and a Hematologist about whether or not I need this blood thinner moving forward. Heres the general consensus-
Hematologist-yes, I will absolutely miscarry without it.
Both RE’s-not for taking it initially since I only have 1 copy, but after 2nd loss figured we should go for it with pregnancy #3; now not sure if it could have been what got me as far along as I was, or if it could have had an adverse effect and even caused a loss. Wtf? I guess there are some studies to support this out there.
OB-no, I dont need it unless I carry both copies of the disorder, or am homogenous for it.
ME-so freaking confused, but leaning towards not doing it this FET cycle even though I have a bunch of shots leftover from last cycle. Hubby is supportive, and is just as unsure really, and so is my mom too.
Here are some of my wishy washy thoughts on the matter-
- I feel like the Lovenox didnt do its job last time, why would it this time?
- What if it did do its job last time and the mass just caused the loss?
- Or did they both cause it?
- If I got pregnant naturally, I wouldnt have ever been on this drug, or even known I carried a copy of this mutation…I would like to be as natural in this totally unnatural process as possible!
- What if we get rid of this mass now, dont do the lovenox, and I really did need it?
- If there is a future genetic issue, the Lovenox doesnt matter anyways (maybe thats what happened with pregnancy 1 & 2?)
Plenty of women with my condition don’t go on it, and have completely normal pregnancies —like half the women in my family!!! BUT, on the other hand, there are also lots of women who recurrently miscarry, do go on it & achieve success.
I guess we would really just like to make our mind up on this so we can finalize a few other decisions such as immune treatment with the FET.
The best case scenario is that someone out there reading this has lived through it and can help a little! Please share if thats you!